susom / redcap-em-proj-heart-transplant

A project specific EM for the Heart Transplant Database

Heart Transplant

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##New Transplant Entry

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The fields that are collected in this form are:

Field label	REDCap variable	Value type
Stanford Medical Record Number	stanford_mrn
Date of Transplant	dot
First Name	first_name
Last Name	last_name
State	address_state
Zip	address_zip
Gender of Recipient	sex_r
Date of Birth	dob
Did the patient receive a kidney transplant?	dem_kidney_tx
Date of Kidney Transplant	dem_kidney_tx_date
Did the patient receive a liver transplant?	dem_liver_tx
Date of Liver Transplant	dem_liver_tx_date
UNOS ID	unos_id
MATCH ID	match_id
Donor Age	age_d
Gender of Donor	sex_d
Meets CDC Guidelines for High Risk	donor_high_risk	See coding table below
Cause of Death	dnr_cause_death	See coding table below

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Coded value mappings

Cause of Death : dnr_cause_death

Code	Label
1	MVA
2	GSW
3	Child Abuse (shaking)
4	Drowning
5	Blunt Head Trauma (Other)
6	Intracranial Hemmorhage
8	Infection
10	Ischemia (other, like seizure)
98	Unknown
99	Other (describe below)

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Meets CDC Guidelines for High Risk : donor_high_risk

Code	Label
1	Yes
0	No
98	Unknown

###Data Entry Checks

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There are some data entry checks in place. If it does not pass the expected behavior, it will not save and warn the user.

Check	Expected behavior
MRN number	MRN must be all numeric
MRN + Transplant Date	MRN and Transplant Date must be unique in the database.

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##Edit Death Data

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The fields that are collected in this form are:

Field label	REDCap variable	Value type
Stanford Medical Record Number	stanford_mrn
Date of Transplant	dot
Cause of Death	r_mode_death	See coding table below
Date of Death	dem_date_of_death

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Coded value mappings

Cause of Death : r_mode_death

Code	Label
1	Acute Cellular Rejection
2	Antibody Mediated rejection
3	Primary Graft Dysfunction
4	Infection
5	Non- Cardiac/Transplant Related
6	Cardiac Allograft Vasculopathy
7	Unknown sudden cardiac death
8	Complications of malignancy
9	Surgical Complications
10	Pulmonary Disease/Respiratory Failure
11	Pulmonary Embolus
12	Multiorgan failure
13	Stroke/CVD
99	Other

Data Entry Checks

There are some data entry checks in place. If it does not pass the expected behavior, it will not save and warn the user.

Check	Expected behavior
MRN + Transplant Date	MRN and Transplant Date must exist already in the database
1 match	If more than one match is found, it will edit the first match and user notified of the multiple matches

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##Annual Update

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The fields that are collected in this form are:

Field label	REDCap variable	Value type
Stanford Medical Record Number	stanford_mrn
Date of Followup	last_folloupw_date
Annual Year	not saved	Used to determine which update
Was the patient started on dialysis THIS PAST YEAR	R_followup_dialysis
Date of Dialysis Initiation	r_post_dialysis_date
Did the patient undergo ICD implantation THIS PAST YEAR?	post_icd
Date of ICD implantation	post_icd_date
Did the patient undergo PPM implantation THIS PAST YEAR?	post_ppm
Date of PPM implantation	post_ppm_date
Has the patient had a PTLD diagnosis THIS PAST YEAR?	mal_ptld_yn
Date of PTLD	mal_date_ptld
Date of Malignancy	mal_date_sot
Type of Malignancy	post_mal_type
Has the patient had a solid organ tumor diagnosis THIS PAST YEAR	sot_type
Has the patient had a MELANOMA diagnosis THIS PAST YEAR	mal_melanoma
Date of melanoma diagnosis	mal_mel_date
Will the patient undergo DSE or Angiogram as part of ischemia testing
Date of Angiogram	rt_cth_date_angiogram
Any vessel stenosis present	Rt_cth_vessel_angiogram
MIT if known	rt_cth_mit
Date of DSE	rt_ech_date
Results of DSE	rt_ech_dse
LVEF on DSE	rt_ech_lvef
What immunosuppressants is patient taking?	Immuno_XX_mo
Type of Echo	rt_ech_type

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Coded value mappings

immuno_XX_mo : immuno_XX_mo

Code	Label
1	tacrolimus (IR)
2	envarsus
3	astagraf
4	cellcept
5	myfortic
6	Pred > 5 mg/day
7	Pred <= 5 mg/day
8	Siro
9	Evero
10	AZA
12	CSA

Data Entry Checks

There are some data entry checks in place. If it does not pass the expected behavior, it will not save and warn the user.

Check	Expected behavior
MRN + Last Name	MRN and Last Name must exist already in the database. The most recent dot will be selected and user notified of the year of transplant